Kayla is a 9yr old girl with a neurodevelopmental disorder called Rett Syndrome. Kayla’s Dad, Emmett, has been her full-time carer for the past six years. In that time, through continuous research and working with nutritionists and dieticians at The National Children’s Hospital in Tallaght, he has learned the nutritional and functional benefits of a whole variety of foods.
Looking after a busy household with Kayla's mum Paula traveling for work, Emmett found batch cooking to be the simplest way to manage a young family along with a child of very special needs without compromising on taste or nutritional value. Soon after starting, Kayla’s Kitchen began providing delicious meals for friends and family.
Kayla’s uncle Karl, who recently passed away from Motor Neuron Disease, used the delivery service during the last few years of his life. This gave him the independence he needed to stay in his own home until just before he passed. Kayla’s grandparents who are in their eighties eat from Kayla's Kitchen everyday. They order every two weeks, taking away the stress and hassle of having to plan, shop and cook for themselves every evening.
Our aim now is to open Kayla’s Kitchen up to others who may benefit from ready made meals of great quality food.
Kayla’s Kitchen is approved by Missy Kayla (she has a very discerning palette for a 9yr old) and by the Tallaght Hospital Diet Clinic, endorsed by her Consultant Paediatrician, Denise McDonald.
Each year, 10% of the retained profits will go to Missy Kayla Trust . The Trust was set up to provide our Kayla with the best possible quality of life and providing for her future to ensure she stays out of state care and always in the care of her family .
What is Rett Syndrome?
Rett syndrome is a rare neuro-developmental disorder resulting in physical and intellectual disability. It affects girls almost exclusively – affecting one in ten thousand female births – most of the girls affected suffer multiple and severe disabilities. It is characterised by normal early development followed by a period of regression where gross motor skills are lost along with any speech that has been developed. Food is a big part of their lives but they don't absorb the nutrients in the same way as others.
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