What is Rett Syndrome?

Rett syndrome is a rare neuro-developmental disorder resulting in physical and intellectual disability. It affects girls almost exclusively – affecting one in ten thousand female births – most of the girls  affected suffer multiple and severe disabilities. It is characterised by normal early development followed by a period of regression where gross motor skills are lost along with any speech that has been developed. Food is a big part of their lives but they don't absorb the nutrients in the same way as others.

 

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